Precocious Puberty in Infants. I am seeking a support network to link too on this condition.?
My granddaughter is 7 months and was diagnosed with precocious puberty at the age of four months. We are just beginning our journey a journey that started in Australia and have done with my children move to New Zealand for a better family support. Our dear child does not (thankfully) one month that his “spear” are only the beginning of a life of drugs. What can we do as a family that is proactive to support not only the mental well-being and growth of our children, but also the acceptance (with age) of its unique location and current treatments. What they have found other families that are useful and support is there just for the link and shout too much (or cry), both times to others who have followed in their path. Please, I can help my dear mokopuna pain (granddaughter) and fear for his adjustments that may occur with age. I know this is not life threatening, but it feels like that when I can not with his pain and discomfort of it.
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I looked all over the net for a support group. I didn’t know what your granddaughter’s diagnosis was, so I couldn’t look for a specific disease. Precocious puberty in infants is so rare I could hardly find anything.
I finally decided in came under the definition of “central precocious puberty,” since most cases of precocious puberty do not involve infants.
I found one group that has networking, information, newsletters, etc., about central precocious puberty. Follow the link. You need to register to get into their pages, and I didn’t register so I can’t tell you what is in them. It is part of a larger organization (the Magic Foundation) that provides information and support for families with children with a number of different conditions.
You are doing the right thing by looking for others to talk to. And don’t be hopeless about it; medicine moves really fast these days.
All my best to you and your darling mokopuna.